Kerala United Against Rare Diseases
India's first state-funded comprehensive care programme for children with rare diseases. Join us in transforming lives through prevention, treatment, and compassionate care.
Comprehensive Care for Rare Diseases
KARE (Kerala United Against Rare Diseases) is a pioneering initiative by the Government of Kerala, making it the first state in India to launch a state-funded treatment programme for rare diseases.
Drawing from the successful experience of the SMA program (2022–2024), the Government of Kerala launched KARE in 2024. The programme focuses on prevention, early identification, and provision of treatment along with access to medicines, therapies, and assistive devices.
To create a sustainable model for comprehensive care and treatment access for children with rare diseases in Kerala.
To mobilize alternative funding and ensure equitable access to high-cost treatments for conditions such as SMA, Gaucher, Pompe, MPS, and others.
Uninterrupted Therapy
Ensure continuous treatment for all eligible patients
Holistic Care
Provide comprehensive care through public health infrastructure
Transparent Funding
Build an accountable ecosystem through philanthropy and CSR
Transforming Lives Across Kerala
Kerala's model has shown that early diagnosis, multidisciplinary care, and timely drug access can transform outcomes in rare diseases.
Children Supported
Crores Target
Diseases Covered
Years of Care
Conditions We Support
KARE provides comprehensive treatment and support for children affected by these rare diseases.
A genetic disorder affecting motor neurons, leading to muscle weakness. Kerala became the first state to provide state-funded SMA treatment.
A genetic disorder where fatty substances accumulate in organs and tissues, affecting the spleen, liver, and bone marrow.
A rare inherited disorder caused by deficiency of an enzyme that breaks down glycogen, affecting muscles throughout the body.
A group of metabolic disorders caused by absence or malfunction of enzymes needed to break down molecules called glycosaminoglycans.
Moments of Hope
Capturing the journey of care, compassion, and community support.
Help Transform Lives
Through KARE, we aim to raise ₹100 crore over the next 3 years to ensure uninterrupted care for existing patients and inclusion of other rare disease categories.
Bank Name
State Bank of India, Trivandrum City (70028)
Account Number
39229924684
IFSC Code
SBIN0070028
Government-Backed Initiative
KARE is an official programme of the Government of Kerala. All donations directly support treatment and care for children with rare diseases.
We invite philanthropists, corporates, and organizations to partner with us in this compassionate mission.
“Kerala's model has shown that early diagnosis, multidisciplinary care, and timely drug access can transform outcomes in rare diseases like SMA. KARE represents our commitment to ensuring no child is left behind due to the rarity of their condition.”Veena GeorgeMinister for Health & Family Welfare, Kerala